Whether you're looking to learn more about Frontotemporal Degeneration (FTD), understand genetic testing, or hear firsthand experiences from families and researchers, our curated resources provide valuable information to guide you on your journey.
PODCAST
Should I Get Genetic Testing?
This episode features the return of Erynn Gordon, CGC, program manager at Progranulin Information Navigator, who brings her expert insight into the complexities and importance of genetic testing in FTD.
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When the Diagnosis Finally Came: Our Journey with Frontotemporal Dementia
A wife’s powerful story of her husband’s frontotemporal dementia diagnosis—how genetic testing revealed the cause and gave their family clarity and hope.
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Thinking About Genetic Testing? Here’s What to Know About Insurance
Learn how genetic testing can impact life, disability, and long-term care insurance, why timing matters, and what legal protections like GINA do—and don’t—cover.
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What Is Frontotemporal Degeneration? A Guide for Families
This guide will help you understand what causes FTD, the different types of FTD, common symptoms, who gets it, what causes it, and what to do if you think someone you love may have FTD.
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Should You Consider an Experimental Clinical Trial for FTD (Frontotemporal Degeneration)?
Considering a clinical trial for frontotemporal degeneration (FTD)? Learn about the potential benefits, risks, and questions to ask before participating in an experimental treatment study.
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Understanding Personality Changes: Differentiating FTD, Dementia & Psychiatric Disorders
Explore the differences between psychiatric disorders, dementia, and Frontotemporal Degeneration (FTD) to better understand the causes of personality changes.
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Your Guide to Considering Presymptomatic Genetic Testing for Frontotemporal Degeneration (FTD)
Learn about genetic testing for presymptomatic Frontotemporal Degeneration (FTD), including risks, benefits, and next steps for families affected by FTD.
PODCAST
How Does Genetic Testing Intersect With Grief?
In this special bonus episode of the Remember Me podcast, genetic counselor Erynn Gordon, MS, CGC discusses the emotional journey of genetic testing, particularly in the context of Frontotemporal Degeneration (FTD) and progranulin-related cases.
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Why Genetic Testing and Clinical Trials Matter for FTD-GRN: A Personal Story
In this video, Betsy Hall shares her deeply personal journey with frontotemporal degeneration (FTD) and the GRN genetic mutation.
